Payton had an extremely…extremely difficult day.
After the casts were on she shortly thereafter she screamed late afternoon, evening and well into the night. I believe she was in a lot of pain and discomfort the way she was crying. I’m not sure how late she cried but it is 1:00 here pst and I pray that baby is sleeping and Katie is getting rest. Hard day and I’m very emotional right now and my heart is breaking. Please pray for Payton and mommy Katie. The specialists say that it might be 2-3 days for Payton to get adjusted to her casts…but 2-3 days of painful screaming, who can endure that. Only with God and Him comforting them. We will believe that she will calm down and be able to do fine with these cast soon, very soon. I’ll update you in a day or two. This load sure is heavy…thanks for carrying this burden with me.
Thanks for your prayers, you make this very difficult journey so much easier! We will continue to ask the Lord for His mighty grace to extend to Payton Grace.
Love,
Cindy
On the Horizon
Sound of a Soft Breath
Ask Steven Hippe.com
Wendy sent this update to me to post:
Blessings to each and every one of you. Happy Fall time.
I apologize for not sending out an update on Payton for a couple of weeks. I had a nasty virus that attacked my upper respiratory and was pretty sick for a week or so. In fact I didn’t even see Payton for over 10 days and even then didn’t get too close. It was difficult but I didn’t want to pass on anything to her. Today I watched this sweet bundle while Katie was at work. I loved every minute of it, she is such a good baby. She was cooing and talking up a storm today, it was so much fun!!!
Lots of things to tell you.
1. Payton’s achilles surgery did not go as well as the surgeon had hoped. They were placing casts on her weekly but he felt that was not helping her feet like he had wanted. So now it is up to Katie and Isaiah to continue to do physical therapy on her, and that is a lot of pressure. We are believing in miracles still for the knees to be unbowed and for the feet to continue to progress despite the doctors report, thank you Lord for your miracle working in Payton daily. We pray this for sweet baby.
2. Last weekend Payton was at emergency at Children’s Hospital again. Seems like she has a lower immune system and seems to pick up viruses (wasn’t from grandma, I stayed way way away from that precious one). She was having seizures and running a slight fever (thank God not a high fever). They were there for about 12 hours and then she was discharged and is doing fine now. We pray for her immune system to strengthen and for her not to get any other sickness or virus, amen.
3. Payton is not focusing like she should. Right now we have no idea what she can see or can’t see. The eye specialist says its too early to tell but there are some definate problems there with the brain and the missing balance and coordination piece, that is affecting her eyes and sight issues. We ask Jesus to heal her eyes so that she can see and focus and smile at all of us, amen Precious Lord.
4. Next week there will be a case worker that works with disabilities coming to Katie and Isaiah’s home, every week. They will focus and help Katie and Isaiah be able to work with Payton’s issues and give them the support they need. It sounds like an incredible program. Thank you Father God for giving these people insight and wisdom into Payton’s daily care. We ask for supernatural miracles daily in Payton.
Well that’s it, thank you for your continued support, prayers and encouragement. Especially to you who send me an email every now and then, that is very comforting.
God bless you so much!
Love,
Cindy
UPDATE FROM WENDY:
I am so excited to share with you the wonderful news we received from Payton’s MRI…and the glory goes to the Lord!
Let me explain:
Last week I went with Katie and Payton to Children’s for her four month old MRI of the brain. It was much better than the first time but still frightening, as there is such a high risk with anesthetic and babies. But even more so in children with arthrogryposis as they are unable to find veins to place the IV in. She was poked so many times and had so many little holes everywhere. One time they had to place it in her scalp, because they couldn’t get it to any vein elsewhere…yikes!
It was a long day as we headed from Enumclaw to Seattle at 6:00 am and arrived home around 5:45 pm. But the day was glorious, thank you Jesus.
After the MRI and the 4-5 hour waiting period to make sure Payton was coming out of the anesthetic okay we waited around for the neurosurgeon who was to read the MRI and find out if the tumor was still there as well as check all the other brain abnormalities. He was late (over an hour) and we were so anxious to hear what he had to say.
The issues they were monitoring again were:
1. Hydrocephalus (swelling on the brain), which would always be there as it never goes away. They are just concerned that it would get bigger.
2. Vermian defect (missing piece of the brain that affects coordination and balance). It would always be missing, impossible to grow back.
3. Tumor (not sure what kind or what it is) but very concerned about it.
4. Corpus collusim (missing piece that signals back and forth from the right to the left brain).
The results:
1. NO HYDROCEPALUS…none!
2. VERMIAN DEFECT GONE…piece there!
3. TUMOR DIMINISHING…nearly gone!
4. Corpus collusim still there but the doctor says there is a 50/50 chance she will not have any problems from this missing piece. Some kids do some don’t.
THIS IS A TOTAL CREATIVE MIRACLE HEALING FROM GOD…HE IS THE ONLY ONE THAT COULD DO THIS IN PAYTON GRACE.
The brain does amazing things as it adapts to it’s surrounding, but you will always have swelling the doctors say and the vermian defect could never grow back. So this is only a God thing! And the doctors of course had no answer to this phenomenon but we all know how it happened….JESUS!
I know you are all rejoicing with all of us concerning Payton. I cannot tell you what it means to me to have our prayers “of faith” being answered in such a miraculous way. As we have stormed the gates of heaven and overflowed the prayer room we have gained favor from God and He has released His healing power in Payton’s life.
What an amazing God we serve and the glory goes to Christ Jesus and He alone.
“By His stripes Payton was healed” as promised in His Word, we serve a faithful God.
Again nothing, nothing I can do or say can thank you enough….nothing.
Payton still has a hard road ahead (eyesight is the biggest thing I’m praying about right now) and she is getting physical therapy by Katie and Isaiah daily! One thing Katie did say was that she was so discouraged with the fact that she didn’t know if Payton would ever even be able to use a fork to feed herself but with the coordination and balance missing how much more difficult could it get. That was her biggest relief when the doctor told her there was nothing on the MRI. Thank you Heavenly Father.
Well I’ve talked enough but needed to get this out to all of you to thank you and give you a miracle praise report for little Miss Payton Grace. You are all precious to me and someday she will read all your sweet notes, prayers and encouragement to her and be so blessed. Thank you again, doesn’t seem enough but it’s all I can say.
GLORY TO GOD FOR PAYTON’S MIRACLE HEALING!
Love you,
Cindy
PS: Payton’s smiling and praising God too!